Movies: Medicine Under the Influence
During pregnancy, Steve and I briefly discussed what we would do if
there was any indication that our baby would be born with genetic
problems. His very easily delivered answer of, "We are not
having a child like that" makes a lot of sense, but I always felt
that it belied the emotional complexity of the situation.
W
e
just finished watching the National Film Board's
Medicine Under the Influence about four children of varying age,
from a few months to 11 years, who were all born prematurely, as
early as 24 weeks. Suddenly, the correctness of Steve's assertions
became very clear. Seeing a newborn at this small a size is
shocking, and watching what they have to do to such a tiny creature
to resuscitate her is inhumane.
The DVD case calls the subject of the documentary "taboo" and
describes it as "the tragic effects of life-sustaining medical
treatment on infants." The story of the children, parents and
therapists all support the idea that once these babies lives are
saved "at all cost" they are soon forgotten and left to their cocoon
of family for survival. One doctor reports that it costs $250,000 in
hospital fees to save each of these babies, but that resources and
funds for their care once they are out of the delivery room are
nearly non-existent. Overworked doctors, understaffed therapists,
unending lists of specialists for the child to spend a life seeing,
and truly burnt out parents make a strong case against the logic and
ethics of "science's little 'miracles'." These parents have realized
that the quality of life that their child has is not worth the
anguish the entire family goes through on a daily basis. One mother
knew from the first days that her baby should not be alive, that
what they were doing to him should not be continuing, but she said
that the hospital staff kept repeating the ideas that she is so
lucky and that the baby is really doing well that it was almost
brainwashing. Her own instinct and reaction, fresh because she had
not been in the situation before, to stop what was happening was
ignored by the medical staff who have been trained (and expected by
society) to save these babies.
While Steve's commitment to not having a child with such severe
problems always made me hesitate and try to think about the
situation, seeing this film made the reality obvious and hard
hitting. Two sets if the parents featured said, in barely
veiled language, that if they knew what was coming, they would have
asked to not save their not-ready-for-this-world baby. As callous as
it can sound to hear that "things happen for a reason," this film
helps prove the truth of this aphorism and shows that the difficult
choice in a situation can be the right one.